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INGID EJOURNAL – March 2010
Dear Members,
This, the second eJournal of 2010 is to remind you again about the INGID conference in Istanbul in October of this year, but first of all here is an invitation from Gaby Strotmann, the President of INGID, as well as reminding you about the International Day of Immunology.
INGID Conference - Istanbul 2010
The next biennial INGID Conference will take place in the beautiful and mysterious city of Istanbul in Turkey from 6-9 October inclusive. The biennial conference of INGID is the major event for the group as it is the time when members can meet each other and the INGID Board, exchange information with each other, doctors, patients and pharmaceutical reps., learn what is going on within the field of primary immunodeficiencies in other countries and centres, find out about new therapies and treatments, and, of course, relax and have fun along with other members of INGID from all over the world. This eNewsletter also contains the first draft programme, and you will see how much time we are giving for members’ presentations, as well as for invited speakers.
The conference, along with the ESID and INGID conferences will take place in the Istanbul Convention & Exhibition Centre (ICEC) - Lütfi Kırdar Congress & Exhibition Centre. For more information, access the conference website:
Programme of the INGID Conference
The INGID Board is continuing to work on completing the programme of events – both education and social. As we complete our activities, the INGID Board will regularly update you on the progress of the sessions and other activities that are being planned for you through the coming months. In addition you can also check on the timetable by accessing the conference website above.
Below, you can also see the programme to date: for Immunodeficiencies (I
INGID - SCIENTIFIC PROGRAMME
Wednesday, October 6, 2010
Wednesday October 6th. 2010
09.00-12.00 Optional Social Event for INGID (members only)
12.30-13.30 Lunch
Educational day Venue: Hall 4 Topkapi-A
13.30-15.00 INGID session
Chairperson: Gaby Strotmann
Educational session 1: Normal Immune System Peter Vickers
15.00-15.30 Coffee/Tea break
15.30-17.00 INGID Session
Chairperson: Gaby Strotmann
Educational session 2: Disorders of the Immune System Gretchen Vaughn
Venue: Hall 1 Auditorium
17.15-18.00 ESID-INGID-IPOPI Opening Session
ESID President, INGID President, IPOPI President, Congress President
18.00-1845 Opening Keynote Lecture
How did our complex immune system evolve ? Max Cooper
18.45-19.45 Social Event
20.00-23.00 Welcome reception
Thursday, October 7, 2010
Thursday October 7th. 2010
Clinical and Scientific Advances Venue: Hall 4 Topkapi-A
08.30-09.30 Opening of INGID Meeting
Presentations of the INGID Board
Gaby Strotmann : Welcome to INGID, World leaders meeting
Mukaddes Can : Welcome to Turkey
Nina Berger Hustad : INGID Program
Amena Warner : Network Lunch
Gretchen Vaughn : Data base and evaluation
Peter Vickers : Web based programs and communication achievements, ASID
09.30-10.30 INGID session
Chairperson: Amena Warner
Advances in diagnosis and treatment of PID Bobby Gaspar
Kindly sponsored by Octapharma, UK
10.30-11.00 Coffee/Tea Break
11.00-12.30 INGID session
Chairperson: Amena Warner
Selected oral presentations
12.30-13.30 Lunch
13.30-15.00 INGID session
Chairperson: Gretchen Vaughn
Selected oral presentations
15.00-16.00 INGID session
Chairperson: Gretchen Vaughn
Structured poster viewing
16.00-16.30 Coffee/Tea Break
Venue: Hall 5 Topkapi-B
16.30-17.15 Joint session with IPOPI
Chairperson: IPOPI
What are the risks of vaccinations for PID patients? Will anti-flu vaccinations be recommendable for PIDs? Andrew Cant
6-9 October 2010, Istanbul / Turkey
Friday October 8th. 2010 Nursing Care Venue: Hall 4 Topkapi-A
09.00-9.45 Joint session with IPOPI
Chairperson: Nina Berger Hustad
What kind of treatments is available in treating PID patients?
What can be done at home and what will have to be done in hospital? Amena Warner
09.45-10.30 INGID session
Chairperson: Nina Berger Hustad
The role of nurses in Health care in Turkey Mukaddes Can
10.30-11.00 Coffee/Tea Break
11.00-13.00 Nurses Networking Luncheon and round tables (only for INGID participants)
Kindly sponsored by Baxter
Roundtable topics:
1. Home therapy Group leader:
2. Nursing research in PID Group leader:
3. Advances in paediatric nursing Group leader:
4. Stress and coping Group leader:
5. IgG therapy Group leader:
6. Nursing protocol for PID Group leader:
13.30-14.30 General Meeting of INGID (only for INGID member)
14.30-16.00 INGID session
Chairperson: Nina Berger Hustad
Presentations by the Group Leaders of the discussions and possible action plans from the Nurses
Networking Luncheon and round tables (only for INGID participants)
Each Group Leader will have 10 minutes
15.30-16.00 Coffee/Tea Break
16.00-17.00 INGID session
Chairperson: Mukaddes Can
Selected oral presentations
18.00 Dinner cruise on the Bosphorus
Saturday, October 9, 2010
Saturday October 9th. 2010
Psychosocial care Venue: Hall 4 Topkapi-A
09.00-09.30 INGID session
Chairperson: Peter Vickers
PID patient survey- Impact of delayed diagnosis
Kindly sponsored by Bioproducts Laboratory (UK)
09.30-10.30 INGID session
Chairperson: Peter Vickers
Decision making - partnership in care Lisa Putt
10.30-11.00 Coffee Break
11.00-12.30 INGID session
Chairperson: Peter Vickers
Selected oral presentations
12.30-13.30 Lunch
13.30-14.30 INGID session
Chairperson: Mukaddes Can
Future outlook, member suggestions
Evaluation and closing remarks
Venue: Hall 1 Auditorium
14.30 - 15.30 Keynote closing Lecture
Crohn's is an immunodeficiency disease of macrophages Tony Segal
15.30-16.00 ESID-INGID-IPOPI Closing Ceremony
19.30-23.00 Gala dinner.
As we continue to stress, however, the final programme will depend entirely upon you, the members, because we need you to take an active part in the conference, including presenting or submitting posters at it.
Please do submit abstracts fro presentations and/or posters. The success of the conference depends entirely on you, the members – not on the INGID Board. Do look at the section below on submitting abstracts, and do make note of the date for submission – June 1st. We cannot accept abstracts after that date.
Abstracts
What you are doing will be of interest to others, so do submit an abstract for either an oral presentation or a poster presentation. After all, you who work in this field are the ‘Experts’
Abstracts on all aspects of the care of people with immunodeficiencies will be very welcome from any of you.
The time has now come for you to submit an abstract so that you can present at the conference and let everyone know of the work you are doing in the field of primary immunodeficiencies. Instructions for submitting an abstract – and all other information on the conference - are to be found by accessing the conference website:
http://www.esid2010.org/
Please note that the last date for the submission of abstracts is June 1st. 2010. That date is not very far away, so, we do urge you to submit an abstract. This is your conference and we want you to make it a success.
However, do remember that the success or otherwise of the conference depends upon you, the members, whether you are presenting or not, but please do put your ‘thinking caps’ on and submit an abstract.
If you want further advice as to how to submit an abstract, or if you are not sure if what you want to submit is suitable – although we are sure it will be - then please do contact one of the Board members (contact details of members of the INGID Board can be found on the INGID website). Because all presentations at the INGID Conference are in English, if you have any concerns as to whether your English is good enough, do not worry - submit your abstract anyway, as we will help you with the English.
Day of Immunology – April 29th. 2010
The 5th. international Day of Immunology (www.dayofimmunology.org) has been organised by the European Federation of Immunological Societies (EFIS) and is the occasion for all interested in immunology to bring awareness of immunology to the public. In addition, 2010 has been declared by the United Nations as the International Year of Biodiversity, which links well with the Day of Immunology. So, the question is, how are you going top celebrate this important day and help and help to spread a knowledge of immunity and immunodeficiencies to the general public. Do let us know what you did so that we can let the INGID members know.
In addition, there is now an initiative with the aim of reigniting the PID campaign in Europe. The campaign will build on the success of the 2006 EU PID Consensus Conference (that included presentations from 3 members of INGID – Ann Gardulf, Amena Warner and Peter Vickers, as well as the substantial work undertaken over the past 5-years by the European PID patient, nurse and physician organisations (EFIS, IPOPI, INGID and ESID).
The aim is to build on the work that has been done to date and to unite all stakeholders push for our common objective of pursuing both early diagnosis and optimal care for patients with PID across Europe. In order to build on this momentum, there has now been drafted a European Reference Paper and Call to Action on Primary Immunodeficiencies (the European Reference Paper as been posted on the INGID website).
Finally
So you can see that there is much that is happening in the fields of Immunology, and Immunodeficiencies, and we would hope that we can all contribute something to the specialty over the next 12 months.
The INGID Board/Peter Vickers (Editor)
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