Bennial Meetings
PROGRAM
VIII Meeting of INGID
's-Hertogenbosch, The Netherlands
October 16-19, 2008
Thursday, October 16, 2008
09.00 - 10.30
Educational Day Session I: CVID
09.00 Opening and welcome
09.05 2 ESID juniors presentations
09.30 B-cell development and immunophenotyping
Jacques J.M. van Dongen (Rotterdam, The Netherlands)
10.00 Clinical aspects of CVID
Helen Chapel (Oxford, United Kingdom)
11.00 - 12.30
Educational Day Session II: Autoimmunity / Immune Dysregulation
11.00 4 ESID juniors presentations
11.50 Diseases caused by lack of immune regulation
Hans D. Ochs (Seattle, USA)
13.45 - 14.45
Educational Day Session III: Deficit of innate immunity
13.45 Disease related to NEMO and IRAK4 deficiency
Jordan Orange (Philadelphia, USA)
14.15 Neutrophil disorders
Terry Flood (Newcastle, United Kingdom)
14.45 - 16.00
Educational Day Session IV: Infectious diseases / PID
14.45 2-3 ESID juniors presentations
15.15 Infections defining PID
Andrew J. Cant (Newcastle, United Kingdom)
16.00 - 16.30 Poster Viewing
16.30 - 18.00 Symposium "Women in PID"
Esther de Vries ('s-Hertogenbosch, The Netherlands), Eleonora
Gambineri (Florence, Italy), Helen Chapel (Oxford, United Kingdom)
Guest speaker: t.b.a.
15.00 - 16.00
Social events only INGID members, Boat Trip on the river
Meet at main entrance at 14.30.
18.15 - 19.45
ESID-INGID-IPOPI Opening Session
Meeting President, ESID President, INGID President, IPOPI President
18.45 Keynote Lecture: Trends in primary immunodeficiencies
Alain Fischer (Paris, France)
19.30 Music
20.00 - 22.00
Welcome reception at Jheronimus Bosch Art Center
Friday, October 17, 2008
OPENING OF THE INGID MEETING Venue: Room Nr. 1
08.30 - 09.30
Opening of INGID Meeting
Presentations of the INGID Board
Gaby Strotmann, Germany
Nina Berger Hustad, Norway
Amena Warner, UK
Peter Vickers, UK
Gretchen Vaughn, USA
Jolanda von Ecsh, the Netherlands
09.30 - 09.50
The INGID website, e-Newsletter and e-Journal
Peter Vickers (Hertfordshire, UK)
09.50 - 10.10
INGID session
Chairperson: Gretchen Vaughn
Immunology nursing at Auckland City hospital Auckland New Zealand
Sanchia Lucille Vos (Auckland, New Zealand)
10.10 - 10.30
Quality of life and psychological adaptation in Children with Chronic Granulomatous Disease and psychological adaptation
P. Titman (London, UK)
10.30 - 11.00
Coffee Break
11.00 - 12.30
Joint session with IPOPI Venue: Cinema room
Chairperson: Marcia Boyle, IPOPI
Proposals on guidelines for the appropriate use of immunoglobulin in the US and UK
Dr. Jordan Orange, US and Dr. Helen Chapel, UK
12.30 - 13.30
Lunch
Optional 12.30 - 14.30
Octapharma Luncheon Symposium
Amena Warner will be in the panel
13.30 - 14.30
INGID session
Chairperson: Nina Berger Hustad
Warning signs of Primary Immunodeficiencies (PID) in newborns and infants
M. Carneiro – Sampaio (São Paulo, Brazil)
13.50 - 14.10
Presentation of the book “Emelie - that’s me”. Introducing home treatment with s.c. immunoglobulin to children younger than 8 years
B. Madsen (Odense, Denmark)
14.10 - 14.30
Home treatment with subcutaneous immunoglobulin infusion to children with primary immunodeficiency disease; The role of the nurse.
Gunn Kathleen Halvorsen (Oslo, Norway)
14.30 - 14.50
Bug and super bug (with aologies to George Bernard Shaw)
Peter Vickers (Hertfordshire, UK)
14.50 - 15.00
Break
15.00 - 16.00
INGID session
Chairperson: Amena Warner
UK Patient Study
Quality of life and coping skills of patients with PID
Dr. Amolak Bansal, UK
Kindly sponsored by Biotest, UK
16.00 - 16.30
Coffee Break
16.30 - 18.00
INGID session
Poster Viewing
Authors will be available for questions
18.30 - 19.30 Cultural Event at St. John's Cathedral
Site viewing of the Cathedral
Saturday, October 18, 2006
09.00 - 09.30
INGID session
Chairperson: Jolanda von Ecsh
Diagnostic protocol for patient-centred screening for PID
Esther de Vries (`s-Hertogenboch, the Netherlands)
09.30 - 09.50
Gender differences in the perceptions of PID disease, IgG replacement therapy and life situation
09.50 - 10.10
Patient – reported infections and symptoms before and after IgG therapy
10.10 - 10.30
Parent’s views on IgG therapy and life situation having child suffering form PID
Data form the national SwePID study
Ann Gardulf (Stockholm, Sweden)
Susanne Hansen (Stockholm, Sweden)
Bengt Steger (Linköping, Sweden)
Ramona Fust (Linköping, Sweden)
Birgitta Persson (Halmstad, Sweden)
Kristina Elnersson (Uppsala, Sweden)
Eva Ericson (Östersund, Sweden)
Carina Hagstedt (Jönköping, Sweden)
Lena Johansson (Göteborg, Sweden)
Uwe Nicolay (Stockholm, Sweden)
10.30 - 11.00
Coffee Break
11.00 - 13.00
Nurses Networking Luncheon and round tables (only for INGID participants)
Kindly sponsored by Sanquin/ Baxter
Roundtable topics:
1. Home therapy Group leader Susanne Hansen
2. Nursing research in PID Group leader Sarita Workman
3. Advances in paediatric nursing Group leader Heidi Sandersen
4. Health-related QoL in PID Group leader Peter Vickers
5. IgG therapy Group leader Nichola Bentley
6. BMT/ Stem cell transplantationGroup leader Gretchen Vaughn
13.30 - 14.30
General Meeting of INGID (only for INGID member)
14.30 - 16.00
INGID session
Chairperson: Amena Warner
Presentations by the Group Leaders of the discussions and possible action plans from the Nurses Networking Luncheon and round tables (only for INGID participants)
Each Group Leader will have 15 minutes
Coffee Break
16.30 - 16.50
INGID session
Chairperson: Nina Berger Hustad
Reduced intensity conditioning regimen for bone marrow transplant in children with immune deficiency; Managing complications and improving outcomes
Gretchen Vaughn (Ohio, USA)
16.50 - 17.10
Parents experiences one year on from their child’s haematopoietic stem cell transplant (HSCY) for severe combined immune deficiency (SCID)
E. J. McDowell (London, UK)
17.10 - 17.30
BMT– of a child with SCID, - before, during and after
Janne Søsborg Andersen (København, Denmark)
20.00 - 24.00
Gala dinner (ESID-INGID-IPOPI members and their accompanying persons only) at the Orangerie
Sunday, October 19, 2006
Joint session with IPOPI Venue: Cinema room
09.00 - 10.30
Chairperson: Amena Warner and Teresa Espanol, IPOPI
Overall highlights from the ESID/INGID/IPOPI Conference
10.30 - 11.00
Coffee Break
11.00 - 12.00
INGID session
Chairperson: Gaby Strotmann
Future plans and collaborations
Member’s suggestions for the future
Evaluation and closing remarks
12.00 - 13.00
ESID-INGID-IPOPI Closing Session
Keynote Lecture: Future developments in innate immune deficiency
Dirk Roos (Amsterdam, The Netherlands)
IPOPI President, INGID President, ESID President, Meeting
President
|
Home
