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Biannual Meetings

Summary of the Evaluation of the
VII INGID Meeting in Budapest

Total 27 answers, but one person did not answer question 1.

1. How satisfied are you with the INGID VII international meeting in Budapest?
Answer from 1-10, with 1 being the lowest and 10 the highest score

No one was rated at less than 5

  1   person was rated at             6
  4   people were rated at            7
12   people were rated at            8
  6   people were rated at            9
  3   people were rated at          10

2. What was the most interesting session of the INGID program and why?

• Roundtable and exchanges with people from different countries and centres - you can discuss with other people and learn from other countries
• Patient satisfaction, both the physiologic aspect of care and the psychological implications are valuable, to learn and discuss
• Guest speaker was really good - an interesting subject.
• Peter Vickers presentations
• Health related quality of life - it is important
• How much gammaglobulin should we give the patient - by Rolf Gustafson
• Oral presentations - heard a lot of new things
• Gene therapy
• Subcutaneous IgG therapy
• Stress following bone marrow transplants
• Subcutaneous IgG training program in Germany
• ESID register
• The workshop mixed with ESID

3. Important items
 1 as most important
                                                                                Average

1. Oral presentations                                            2,0
2. Invited guest speaker                                       2,1               
3. Networking luncheon                                         2,7        
4. Free time to attend ESID/IPOPI sessions          3,9
5. Posters                                                              4,5
6. Social events                                                     5,3 

Further comments

• Very provoking lectures learnt a lot, very meaningful.
• Have the networking lunch earlier in the program, so we can know each other better.
• I found that the table top exercise very informative.
• It would be helpful to have handouts/ not enough handouts.
• A positive thing was being able to meet other nurses.
• Too much about IgG and too short about Gene therapy.
• Networking is important to get to know and other members
• Safety of nurse specialist role in the UK.
• Time too short in roundtables, should have smaller groups and divide into those looking after children and those looking after adult patients.
• Difficulty when 2 sessions from INGID and ESID are at the same time.
• Better than ESID
• A list of attending members of INGID would have been helpful.
• Could we have free water and coffee - didn’t like the ticket system
• Better lunch boxes or a buffet
• The speaker and chair should attempt to keep the time

4. What topics would you like to have on the program for the next INGID meeting?      

• More on health related quality of life.
• SCIg experience with children.
• IPOPI members to speak about their experience as a patient.
• Problems with psychosocial development during isolation and problems with food.
• Care around bone marrow transplants and Graft versus Host Reaction.
• Relations with families.
• Gene therapy.
• New types of treatments.
• Projects and nursing research.
• Different methods in research.
• Presentations on ethics.
• More clinical cases and nursing practice.
• Basic knowledge of the body and immune system – topics on immunology.
• Decision making of patients/parents.
• Different work in different countries – presentations from other countries.
• A forum to meet nurses from different countries - introduction of everybody to see which countries are represented.

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